Our Mission

To provide the CdLS Community with a strong resource of support and awareness.

*CdLS Awareness is not an expert source, but is run by the community: people who live with CdLS close to them.


CdLS Awareness has been designed for community involvement.

We believe one of the best ways to spread awareness, is to share our experiences. This is why we have a Meet the Kids section. Everyone experiences Cornelia de Lange Syndrome differently, and sharing our stories allows for the community to connect and provide support for each other.