A Caregiver's Perspective

A Community Blog to for Parents, Caregivers, and Advocates to support each other and our loved ones with Cornelia de Lange Syndrome by sharing our stories, experiences, advocacy, and advice. 

Definition of Different

Definition of Different

Dictionary.com defines different as “not identical; separate or distinct.” But is this the true definition of different? People have become scared of what is unfamiliar or does not meet the status quo. In our culture, different has come to mean weird, stupid, uncomfortable, or wrong.

It's A Spectrum

It's A Spectrum

If your child has been diagnosed with Cornelia de Lange Syndrome, you have most likely asked a ton of questions, and done even more research. In this endeavor, you surely have seen "Autism" dropped all over the place, as it is listed as a common characteristic of CdLS. But what is Autism? Is it the same as CdLS? Does everyone with Cornelia de Lange Syndrome have Autism?

Share Your Perspective!

Share Your Perspective!

Are you a parent of someone with Cornelia de Lange Syndrome?A caregiver? An advocate? However you are connected to the CdLS Community, sharing your experiences, advice, or thoughts is a perfect way to spread both Awareness and Support.